Choose Your Language:
Posted by: The Sumaira Foundation in News & Announcements
On June 13, 2023, TSF’s India Ambassador, Clarinda Cerejo participated in a multi-stakeholder workshop on the national rare disease policy of India in Delhi, India. The workshop was organized by […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
June 14, 2023 — The Sumaira Foundation (TSF), a global patient advocacy organization focused on rare neuroimmune conditions, is delighted to announce Tim Walbert, chairman, president and chief executive officer […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Sara Salama, MD, PhD, of Alexandra University (Egypt) to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes her the […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Salman Aljarallah, MBBS, of King Saud University in Riyadh, KSA, to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
For those of you who joined us last month for TSF’s 6th Annual Gala, we can’t thank you enough for making it a night to remember! Beyond fundraising for research, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
Read MorePosted by: The Sumaira Foundation in News & Announcements
28 février 2023 – The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Je m’appelle Bérengère, j’ai une maladie rare appelée NMOSD. 2001: J’ai 21 ans, bientôt 22, et tout va bien dans ma vie, je travaille, j’ai un copain, des amies, une […]
Read More
