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Posted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It was December 27, 2022, two days after a quiet but emotionally stressful Christmas in India when I noticed a blurry white spot in my left eye which showed up […]
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Je m’appelle Nelly, j’ai 44 ans et je vis dans un joli village dans l’Oise et j’ai la MOGAD. Sans le savoir cette maladie m’avait déjà fait un petit clin […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Ciao a tutti, mi presento, sono la mamma di Auri. Mi piace presentarmi così, perché questa è la sua storia, la storia di una bambina bella e forte che nel […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża. Bardzo bym chciała, żeby nasza historia była dla Ciebie przykładem nadziei […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
On Monday, I woke up with a slight ache on the left side of my lower back which felt numb, like a bruise but without the pain. This numb spot […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
I was a young resident at the University of Verona’s, Neurology Unit when I met a woman with rapidly evolving extensive myelitis. I first thought about NMOSD and asked our […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD. Actually, there were two of them in the same neuroimmunology […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my second daughter earlier that year. As nice as that should […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took […]
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