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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Kailee. I am a mom, wife, daughter, teacher, dance instructor, and I have neuromyelitis optica spectrum disorder (NMOSD). I was diagnosed at 25 years old, in May […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
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The year was 2007 and I had just returned to school from summer break, twelve years old and excited to start the 7th grade with new classmates and new opportunities. […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Professional, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My NMO journey began in 2018. It was Martin Luther King Day. I was visiting my parents for the weekend. When I got up in the morning, I remember looking […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
It all started with an itch at the back of my neck that continued for about three weeks without any sign of a rash or anything that could be causing […]
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