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Posted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża. Bardzo bym chciała, żeby nasza historia była dla Ciebie przykładem nadziei […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Professional, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
On Monday, I woke up with a slight ache on the left side of my lower back which felt numb, like a bruise but without the pain. This numb spot […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My NMO journey began in 2018. It was Martin Luther King Day. I was visiting my parents for the weekend. When I got up in the morning, I remember looking […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
It all started with an itch at the back of my neck that continued for about three weeks without any sign of a rash or anything that could be causing […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]
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