El jueves 21 de agosto a las 6pm hora Colombia, el Dr Carlos Navas de Colombia y el Dr Edgar Carnero de Argentina nos contarán los tratamientos para NMOSD. ¡¡Acompáñanos!!
TSF Deutschland lädt deutschsprachige MOGAD-Patienten, Pflegekräfte und Kliniker ein, an unserem kommenden Live-Webinar “Verständnis von MOGAD und der Bedeutung der Patientenbeteiligung an klinischen Studien - mit Professor Friedemann Paul, Neuroimmunologe an der Charité - Universitätsmedizin Berlin” teilzunehmen. Live-Teilnehmer haben die Möglichkeit, Prof. Paul in Echtzeit Fragen zu stellen. Diese Sitzung wird aufgezeichnet und kann danach […]
कृपया 23 नवम्बर को सुबह 9 बजे IST पर हमारे विशेष वेबिनार में सम्मिलित हों, जिसमें डॉ. पार्थवी रावत द्वारा डिमायेलिनेटिंग बीमारियों से प्रभावित रोगियों और उनके परिवारों को शिक्षित और सहायता प्रदान करने हेतु बहुमूल्य जानकारी और विशेषज्ञ मार्गदर्शन दिया जाएगा। लाइव वेबिनार में शामिल होने वाले प्रतिभागियों को डॉ. रावत से सीधे प्रश्न […]
Les résultats sont là ! Vous avez peut-être participé à l'enquête réalisée par Alexion en partenariat avec The Sumaira Foundation France intitulée "Vécu, besoins et attentes des patient(e)s atteint(e)s de NMOSD". En compagnie du Docteur Livia Lanotte, neurologue et présidente du réseau Alsacep, et Bérengère, ambassadrice TSF, nous reviendrons sur les résultats et les enseignements […]
TSF 최초의 국내 환자교육 웨비나에 여러분을 초대합니다. 1월 21일 화요일 오전 9시에 NMOSD와 MOGAD 전문가 김호진 박사가 출연하여 MOGAD, MS 및 NMOSD 간의 유사점과 차이점을 논의하는 독점 프로그램에 참여하세요. 참석자들은 김 박사에게 질문할 기회를 갖게 됩니다. 이 웹 세미나는 녹화되어 TSF의 YouTube 채널에서 재생할 수 있습니다. 등록하려면 https://us02web.zoom.us/webinar/register/WN_7G2vm1JvTJeRgyB0cLrGMQ를 방문하세요.
Les troubles du sommeil sont courants dans les maladies neurologiques. La NMO et la MOGAD ne font pas exception. Que ce soit les troubles de l'endormissement, les réveils, le sommeil peu réparateur, les troubles sont variés et difficiles de s'en débarrasser. En compagnie de Véronique Carrette, sophrologue et hypnothérapeute, Bérengère et Fatiha, ambassadrices TSF, nous les […]
Join us on December 20th for TSF's final webinar of 2024: Managing Incontinence with Neuroimmune Disorders featuring Dr. Raveen Syan, Urologist and Assistant Professor of Clinical Urology at The University of Miami. Dr. Syan will discuss urinary, bowel and sexual dysfunction in the setting of neuroimmune conditions. Attendees joining the live program will have the […]
Únase a nosotros el 3 de febrero para una presentación en vivo y una discusión sobre las opciones de tratamiento para pacientes de MOGAD en América Latina. Para registrarse, visite: https://us02web.zoom.us/webinar/register/WN_hLhettqCQQGgi1nt5Lf68A Los asistentes tendrán la oportunidad de hacer preguntas a los expertos. Este seminario web se grabará y estará disponible para reproducirse en […]
We're calling pediatric patients and their parents/caregivers to join us on March 6th for a special webinar featuring experts from Children's National Hospital and George Washington University. This webinar will provide an overview of the transition from pediatric to adult medical care, featuring insights from a pediatric neurologist, social worker, and a neuropsychologist. Topics will […]
In honor of NMO Awareness Month 2025, TSF is excited to present "NMOSD in Sub-Saharan Africa," a live event exploring the landscape of NMOSD and other rare neuroimmunological disorders. Join us on Monday, March 17th, for an exclusive webinar featuring Dr. Mashina Chomba (Zambia), Dr. Fiifi Duodu (Ghana), Dr. Pearl Thomas (South Africa), and Dr. […]
La fatigue et la fatigabilité touchent toutes les personnes souffrant de NMOSD et de MOGAD. Cela reste la première cause de baisse de la qualité de vie mais est assez difficile à gérer. Imprévisible, durable, la fatigue n'est pas gérable avec une pilule miracle. Pour aborder ce sujet nous serons en compagnie du docteur Nathalie […]
Vaccines play a crucial role in protecting immunocompromised patients, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious diseases to others. For immunocompromised patients, the risk of severe illness or complications from diseases such as flu, pneumonia or COVID-19 is significantly higher, making vaccination a […]
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