Nous vous invitons à rejoindre notre prochain webinaire le lundi 27 mai à 14h00 CET avec Marie Delenne, Patiente Experte Sclérose en Plaques et ancienne Inspectrice du Travail. Démarches administratives quand on est en situation de handicap, quelle galère ! Travail, Sécu, MDPH, RQTH, Retraite ! Venez en parler avec nous et recevoir les conseils […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in or around Ohio? You're invited to our special day! In collaboration with Dr. Amy Kunchok, Dr. Mary Rensel and Dr. Justin Abbatemarco at the Cleveland Clinic, The Sumaira Foundation is pleased to invite you to TSF's Cleveland Patient Day, a special day dedicated […]
In 2014, there were 0 FDA-approved therapies for patients living with neuromyelitis optica spectrum disorder (NMOSD). In 2024, there are 4 efficacious, FDA-approved therapies available for patients living with NMOSD. You're invited to "Approved NMOSD Therapies" a live webinar during which Dr. Sean Pittock* of the Mayo Clinic will provide overviews (pharmacology, drug delivery method, […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus […]
Convivir con un diagnóstico médico puede representar desafíos en diferentes áreas, pero ¿Eso significa necesariamente que se convierte en el sol alrededor del que todos los planos de mi vida giran? ¿Qué hay de si también planteamos la posibilidad de que podría ser como el planeta Tierra?, que si bien tiene al Sol como referencia […]
The Human Collective Project (HCP) è l’incontro del gruppo di supporto di TSF offerto a chiunque sia stato colpito/colpito da NMOSD/MOGAD. Il programma è nato durante il culmine della pandemia di COVID-19 nel 2020, quando la maggior parte dei NMOSD/MOGAD si sentiva particolarmente isolata e vulnerabile al coronavirus come membri della società immunosoppressi/immunocompromessi. L’isolamento che […]
HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
You're invited to celebrate 10 years of TSF! Join us on Thursday, July 18th at 7:00 PM for an evening of music, dancing, food/drinks and nostalgia as we commemorate a decade of impact while raising funds to support NMOSD and MOGAD research around the world. This social event will take place at Nikolai's Roof (at Hilton […]
Are you an NMOSD/MOGAD patient, caregiver, clinician, nurse, researcher and/or advocate in or around Georgia? You're invited to our special day on Sunday, July 21st at 11 AM at Emory Brain Health Center. In collaboration with Dr. Grace Gombolay & Dr. Spencer Hutto (Emory) and Dr. Mitzi Joi Williams (Joi Life Wellness), The Sumaira Foundation […]
