Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies at the RARE Patient Advocacy Summit.
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
“Coaching Klatch: Moving You Forward” is a 3-part program designed to bring patients and caregivers together in a supportive community to: learn & apply coaching concepts acquire tools to strengthen self-advocacy Enhance quality of day-to-day lived experiences move forward in your life despite living with a rare disease Led by Dr. Maggie Kang*, this […]
Está invitado a asistir a la videoconferencia: “La importancia de un acercamiento multidisciplinar en NMOSD y MOGAD”, el Martes 24 de Octubre a las 18:00 hora en España, con el Dr. Alvaro Cobo, Neurológo del Centro de Esclerosis Múltiple de Catalunya (Cemcat), Hospital Universitario Vall d’Hebrón, Barcelona, España Tras la presentación inicial de 25 minutos, […]
Po raz pierwszy w Polsce na pytania pacjentów dotyczące MOGAD odpowie dr hab. Maciej Juryńczyk, Ordynator Oddziału Neurologicznego w Szpitalu Wolskim w Warszawie, neurolog specjalizujący się w leczeniu tej rzadkiej choroby neurologicznej. Zapraszamy serdecznie do wysłuchania naszej rozmowy wszystkich zainteresowanych, a w szczególności osoby borykające się z objawami neurologicznymi i szukające diagnozy. Program ten jest […]
Kære NMOSD og MOGAD patienter og pårørende. Vi er glade for at invitere dig til et særligt Zoom-møde med den ansete professor-neurolog af syddansk Universitet, Dr. Nasrin Asgari. Dr. Nasrin Asgari, en fremtrædende neurolog med omfattende ekspertise i NMOSD og MOGAD, slutter sig til os som en særlig gæst. Hendes værdifulde indsigt og […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
La Asociación de Lucha contra la Esclerosis Múltiple (ALCEM), La Fundación Sumaira y NMO Argentina convocan a la actividad a realizarse el 28 de octubre de manera virtual y con inscripción previa. Su finalidad es ampliar información sobre esta rara patología y proporcionar formación sobre el tema. Está dirigido a profesionales de la salud, pacientes […]
The Sumaira Foundation is pleased to invite you to TSF's New York City Patient Day, a day exclusively dedicated to NMOSD & MOGAD patients, caregivers and clinicians. Join us for a day of education, community, and fun where you'll Meet local NMOSD & MOGAD patients, caregivers and clinicians from and around New York City Ask experts […]
