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Event Series From The Experts

NMOSD, MOGAD und MS: Gemeinsamkeiten und Unterschiede

Virtual: Germany , Germany

Herzliche Einladung zum ersten Live-Webinar "NMOSD, MOGAD und MS: Gemeinsamkeiten und Unterschiede" der Sumaira-Foundation für die deutschsprachige NMOSD & MOGAD Community am Montag, den 13. Februar, mit Dr. Joachim Havla, Neurologe und NMOSD/MOGAD-Spezialist an der Ludwig-Maximilians-Universität München. Dr. Havla wird die Gemeinsamkeiten und Unterschiede zwischen NMOSD, MOGAD und die Abgrenzung gegenüber der Multiplen Sklerose erläutern. […]

Event Series Human Collective Project

TSF’s Human Collective Project Meetings

Virtual: United States , United States

The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Public Meeting: FDA Rare Disease Day 2023

Virtual: United States , United States

Webcast Information Join the webcastExternal Link Disclaimer to watch the livestream on February 27 beginning at 9 a.m. (ET). Summary FDA will host Rare Disease Day, a virtual public meeting, on February 27, 2023, 9:00 am – 4:45 pm ET, in global observance of Rare Disease Week. This year’s theme is “Intersections with Rare Diseases – A […]

SRNA Rare Disease Day

Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.

Rare Disease Day at NIH 2023

Virtual: United States , United States

Rare Disease Day®(link is external) takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Since 2011, NCATS and the NIH Clinical Center have sponsored Rare Disease Day at NIH as part of this global observance. Rare Disease […]

2023 Ohio Rare Disease Day Event – Cleveland

Case Western Reserve University, Tinkham Veale Ballroom 11038 Bellflower Road, Cleaveland, OH, United States

The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106 You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare […]

MEET YOUR EXPERTS – Triff deine Experten!

Virtual: Germany , Germany

MEET YOUR EXPERTS – Triff deine Experten! Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch Wann: 28. Februar 2023 Durchgängig zwischen 10 und 18 Uhr Wie: Einfach vorbeischauen! Online (via Zoom) ohne Anmeldung über folgenden Link: https://bit.ly/meet-NEMOS-experts @Was? Mit Expertinnen und Experten ins Gespräch kommen, Fragen stellen, Gelegenheit zum offenen Austausch, Info-Schnipsel […]

Event Series Human Collective Project

TSF’s Human Collective Project | Danmark

Virtual: Danmark , Denmark

The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Event Series Human Collective Project

TSF Plauderstunde | HCP Germany

Virtual: Germany , Germany

The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Event Series Human Collective Project

TSF’s Human Collective Project | Global Meetings

We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our global support group meeting in 2023! These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) The Human Collective Project (HCP) is TSF’s support […]

Event Series From The Experts

Les MOGAD et NMOSD chez l’enfant et adolescent

Virtual: France , France

Rejoignez-nous le mardi 14 mars pour le prochain webinaire "From the Experts" de TSF en français avec Dr. Kumaran DEIVA, neuro-pédiatre à Paris, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. Les participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire […]

Event Series TSF Book Club

TSF Book Club | “Shifting Into High Gear” by Kyle Bryant

Virtual: United States , United States

You're invited to join TSF's next book club meeting on March 14th , during which we'll discuss "Shifting Into High Gear" by Kyle Bryant. Shifting Into High Gear charts the course of Kyle Bryant's transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich's ataxia, a life-shortening and disabling disease. […]

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