The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
There are a number of different autoimmune disorders with similar features to Multiple Sclerosis (MS), such as neuromyelitis optica spectrum disorder (NMOSD) and myelin oligodendrocyte glycoprotein antibody disorder (MOGAD). These diseases share striking similarities that ultimately affect the way in which our communities understand and manage the diagnosis. Hence, it is of utmost importance for […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the […]
Herzliche Einladung zum ersten Live-Webinar "NMOSD, MOGAD und MS: Gemeinsamkeiten und Unterschiede" der Sumaira-Foundation für die deutschsprachige NMOSD & MOGAD Community am Montag, den 13. Februar, mit Dr. Joachim Havla, Neurologe und NMOSD/MOGAD-Spezialist an der Ludwig-Maximilians-Universität München. Dr. Havla wird die Gemeinsamkeiten und Unterschiede zwischen NMOSD, MOGAD und die Abgrenzung gegenüber der Multiplen Sklerose erläutern. […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Webcast Information Join the webcastExternal Link Disclaimer to watch the livestream on February 27 beginning at 9 a.m. (ET). Summary FDA will host Rare Disease Day, a virtual public meeting, on February 27, 2023, 9:00 am – 4:45 pm ET, in global observance of Rare Disease Week. This year’s theme is “Intersections with Rare Diseases – A […]
Join us for a Rare Disease Day celebration. Connect with others and listen in during our #RareRoundtable conversation.
Rare Disease Day®(link is external) takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Since 2011, NCATS and the NIH Clinical Center have sponsored Rare Disease Day at NIH as part of this global observance. Rare Disease […]
The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106 You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare […]
