Les résultats sont là ! Vous avez peut-être participé à l'enquête réalisée par Alexion en partenariat avec The Sumaira Foundation France intitulée "Vécu, besoins et attentes des patient(e)s atteint(e)s de NMOSD". En compagnie du Docteur Livia Lanotte, neurologue et présidente du réseau Alsacep, et Bérengère, ambassadrice TSF, nous reviendrons sur les résultats et les enseignements […]
TSF lo invita a unirse a nuestro próximo seminario web en español sobre MOGAD y la importancia de la participación de los pacientes en los ensayos clínicos. Nos sentimos honrados de contar con el Dr. José Flores de México y la Dra. Lucienne Costa Frossard França de España. ¡Esperamos que se una a nosotros en […]
TSF è lieta di invitare tutti i pazienti italiani con NMOSD e MOGAD, i loro caregivers, ed i medici interessati a queste patologie a partecipare a questa giornata di formazione, unione e divertimento. In collaborazione con la Dr.ssa Sara Mariotto dell' Università di Verona, The Sumaira Foundation è lieta di invitarvi alla 2° Giornata per […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
TSF 최초의 국내 환자교육 웨비나에 여러분을 초대합니다. 1월 21일 화요일 오전 9시에 NMOSD와 MOGAD 전문가 김호진 박사가 출연하여 MOGAD, MS 및 NMOSD 간의 유사점과 차이점을 논의하는 독점 프로그램에 참여하세요. 참석자들은 김 박사에게 질문할 기회를 갖게 됩니다. 이 웹 세미나는 녹화되어 TSF의 YouTube 채널에서 재생할 수 있습니다. 등록하려면 https://us02web.zoom.us/webinar/register/WN_7G2vm1JvTJeRgyB0cLrGMQ를 방문하세요.
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Les troubles du sommeil sont courants dans les maladies neurologiques. La NMO et la MOGAD ne font pas exception. Que ce soit les troubles de l'endormissement, les réveils, le sommeil peu réparateur, les troubles sont variés et difficiles de s'en débarrasser. En compagnie de Véronique Carrette, sophrologue et hypnothérapeute, Bérengère et Fatiha, ambassadrices TSF, nous les […]
