TSF is pleased to invite you to an exclusive "Meet the Author" fireside chat between Sumaira and Kyle Bryant, an author, athlete, speaker, and spokesperson for Friedreich's Ataxia Research Alliance (FARA). "Shifting Into High Gear" charts the course of Kyle's transformation as he journeys on a recumbent tricycle across the United States in the throes […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
We’re excited to bring NMOSD/MOGAD patients + caregivers from around the globe together for our global support group meetings in 2023! These meetings are a safe space led by the community for the community. No judgment; only love & support. (This meeting will be conducted in English) The Human Collective Project (HCP) is TSF’s support […]
Avec bienveillance, ouverture d'esprit, empathie, venez échanger avec TSF France et Delphine Mutot sur ce qu'est pour vous la vie intime, affective et sexuelle. Sentez-vous libre de poser toutes les questions que vous souhaitez, et d'utiliser les mots avec lesquels vous êtes à l'aise. Pas de chichi entre nous! Retrouvez-nous le 21 avril 2023 à […]
You are invited to attend The Sumaira Foundation’s 6th Annual Gala Saturday, April 22, 2023 at 8 PM at The Newbury Boston This event is black-tie optional. We’ve set an ambitious goal to raise $375,000 Click here to view the research we’ve been able to fund thanks to you!
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Venez participer à notre prochain webinaire - MOGAD : l'importance de la participation des patients aux essais cliniques - le mardi 25 avril à 20 heures avec le docteur Romain Marignier, professeur de neurologie et responsable du centre MIRCEM de Lyon. Il partagera avec nous les dernières actualités sur les essais cliniques en cours pour […]
Está invitado a asistir a la videoconferencia "NMOSD y MOGAD, Perlas en el Diagnóstico y Opciones para el Tratamiento" el viernes 27 de abril a las 2:00 pm México / 4:00 pm Venezuela / 5:00 pm Argentina. Médicos especialistas de 3 diferentes países de Latinoamérica unen esfuerzos para abordar temas de interés común para todos. […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
In celebration of NMOSD & MOGAD Awareness Months, TSF is pleased to present "Cabaret for a Cause," a dance class taught by professional choreographers / show girls from a world-renowned cabaret in Paris, France. Emma Castel and Deborah Lettieri will be teaching the class for both standing and seated attendees! 100% of proceeds will be […]
Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 Collaboration is the foundation of success in rare disease research. Knowing who to work with, what strategies to use, and how to prepare for discussions can help you overcome barriers posed by small populations and limited funding. At the Rare […]
