The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
We wisselen ervaringen en tips uit om zo elkaar in een veilige omgeving te ondersteunen. Onderdeel van de "Human Collective Project (HCP) Meetings" van de Sumaira Foundation. Deze lotgenotencontacten worden in verschillende talen aangeboden. Aanmelden voor deze bijeenkomst kan via: ZOOM
Have you or any of your loved ones been diagnosed with NMOSD or MOGAD and you’re looking for answers? NMOSD and MOGAD are rare autoimmune diseases involving demyelination or inflammation of the central nervous system. They are often misdiagnosed as multiple sclerosis but are distinct diseases and require different treatment approaches. Join Dr. Lekha Pandit, […]
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Vous êtes invités à rejoindre la 1ère Journée Patients NMOSD & MOGAD de TSF France à Paris! Venez rencontrer des experts, suivre nos ateliers, rencontrer les différents acteurs de NMOSD et de MOGAD. Venez mettre en lumière la NMOSD et la MOGAD avec Sumaira et TSF France. Pour vous inscrire, visitez www.tinyurl.com/TSFParis Événement gratuit organisé par […]
HCP is a great way to meet others in similar circumstances in this rare community; it is a safe space to laugh, cry, vent, share wins, etc. This program is driven and led by TSF Patient and Caregiver Ambassadors worldwide.
Comment parler de la maladie à son entourage? Rejoignez TSF France pour son dernier webinaire de l'année le 28 décembre avec Emilie Leta, Psychologue diplômée d'état. Ce programme d'éducation des patients est rendu possible grâce au soutien d'Alexion Therapeutics.
