Rare Disease Day®(link is external) takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Since 2011, NCATS and the NIH Clinical Center have sponsored Rare Disease Day at NIH as part of this global observance. Rare Disease […]
The Ohio Rare Action Network invites you to join us for Rare Disease Day in Cleveland Tuesday, February 28, 2023 at 8:30 AM Case Western Reserve University, Tinkham Veale Ballroom, 11038 Bellflower Road, Cleveland, OH 44106 You’re invited to join patients, caregivers, and other rare disease advocates as we raise awareness and celebrate the rare […]
MEET YOUR EXPERTS – Triff deine Experten! Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch Wann: 28. Februar 2023 Durchgängig zwischen 10 und 18 Uhr Wie: Einfach vorbeischauen! Online (via Zoom) ohne Anmeldung über folgenden Link: https://bit.ly/meet-NEMOS-experts @Was? Mit Expertinnen und Experten ins Gespräch kommen, Fragen stellen, Gelegenheit zum offenen Austausch, Info-Schnipsel […]
