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The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel […]
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The Sumaira Foundation
in News & Announcements
On February 9, 2019, Barre Groove hosted TSF’s first-ever charity event, POM for NMO, to raise awareness and money for neuromyelitis optica. We raised over $500, got a killer workout, and 10 […]
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The Sumaira Foundation
in NMO, Patient, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I […]
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The Sumaira Foundation
in NMO, Patient, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Nothing can fell Marie. No matter the punches that NMO throws, Marie just gets up again and keeps on going. A strong young woman who has learned to live with […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a […]
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Posted by:
The Sumaira Foundation
in News & Announcements
On October 11, 2018, The Sumaira Foundation for NMO (TSF) announced its partnership with the Transverse Myelitis Association (TMA). Both organizations specialize in raising awareness for rare neuro-immune disorders while […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation […]
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Posted by:
The Sumaira Foundation
in News & Announcements
We are proud to announce the launch of TSF Spark Grants! Frequently Asked Questions Who is eligible for the grant award? Clinical, translational and basic researchers with experience in […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Here is my story of how I was diagnosed with Neuromyelitis Optica and just how scary it can be knowing that something is wrong but not being able to find […]
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