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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Letitia and I am a 22-year-old South African NMO patient. My story began on the 26th of December 2017, Boxing Day… I had been suffering with an […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 31, 2020 — The Sumaira Foundation for NMO is pleased to present the results of the NMO community’s outreach efforts to have March declared “NMO Awareness Month” across the […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
It was March 2009. I was 39 years old. One morning, I woke up feeling significant pressure behind my left eye. I felt it mostly in the right corner of […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The NMO Clinic and Research Laboratory at Massachusetts General Hospital November 7, 2019 – Three board members of The Sumaira Foundation for NMO, Dr. Michael Levy, Dr. Marcelo Matiello, and […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
October 30, 2019 – The Sumaira Foundation for NMO is pleased to welcome Bart Chwalisz, MD to its medical advisory board. Bart Chwalisz, MD Dr. Chwalisz grew up in Poznan, […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, ON, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. […]
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