Tag: awareness

Robin’s NMO Story – Living in the Moment with NMO

Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO

I was diagnosed with Neuromyelitis Optica on July 25, 2015.  My story is a little different than many of the stories I’ve heard or read about because my symptoms started […]

EVENT RECAP | THE CHEF + THE DOCTOR FOR NMO

Posted by: The Sumaira Foundation in News & Announcements

Thank you to our fabulous guests, featured speakers  Drs. Dean Cestari and Marcelo Matiello, Chef Bouley + the Bouley Culinary Team for helping us raise NMO awareness us at The […]

Jeanette’s NMO Story – Surviving Since Birth

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses […]

ACTION REQUIRED | Time for Advocacy; Call Your Representatives & Senators

Posted by: The Sumaira Foundation in News & Announcements

Find your legislators here: https://whoismyrepresentative.com  If you have additional questions or need help, please contact Gabriela

Arif’s Story – Becoming Stronger with TM

Posted by: The Sumaira Foundation in Patient, TM, Voices of NMO

My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year […]

EVENT RECAP | NMO Picnic in the Park

Posted by: The Sumaira Foundation in News & Announcements

Thank you to everyone who made our NMO picnic in the Park such a wonderful day! We loved kicking off autumn at the Parkman Bandstand in Boston Common, especially alongside our NMO superheroes, families, friends + and the […]

Ria’s NMO Story – Stronger Than You Know Fighting NMO

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

Recently, Ria’s mother’s blood pressure climbed dangerously high.  Her father is scheduled for a triple bypass later this week.  It’s been an unusual few months for a woman who has […]

Daniele’s NMO Story – MENINA CORAGEM (Courageous Girl)

Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO

I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]

Kia’s NMO Story – Deciphering my Diagnosis

Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO

The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. […]

A Note from our Founder

Posted by: The Sumaira Foundation in Blog Posts