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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
My name is Kailee. I am a mom, wife, daughter, teacher, dance instructor, and I have neuromyelitis optica spectrum disorder (NMOSD). I was diagnosed at 25 years old, in May […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
September 5, 2023 — The Sumaira Foundation is pleased to welcome Professor Lekha Pandit of Nitte University in Mangalore, India, to join TSF’s international Medical Advisory Board. Pr. Pandit joins TSF […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 14, 2023 – The Sumaira Foundation (TSF) is pleased to welcome Leda Bresnov to our leadership team as International Ambassador Liaison. As of August 2023, the Foundation is proud […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, July 22, 2023, we hosted TSF’s Southern California Patient Day for NMOSD & MOGAD at UCLA Meyer and Renee Luskin Conference Center in Los Angeles where we were […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża. Bardzo bym chciała, żeby nasza historia była dla Ciebie przykładem nadziei […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
June 21, 2023 — The Sumaira Foundation is pleased to welcome Álvaro Cobo-Calvo, MD, PhD, of the Multiple Sclerosis Centre of Catalonia (CEMCAT) in Barcelona, Spain, to join TSF’s Medical Advisory […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Professional, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
June 14, 2023 — The Sumaira Foundation (TSF), a global patient advocacy organization focused on rare neuroimmune conditions, is delighted to announce Tim Walbert, chairman, president and chief executive officer […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Sara Salama, MD, PhD, of Alexandra University (Egypt) to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes her the […]
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