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Posted by: The Sumaira Foundation in News & Announcements
August 23, 2019 – The Sumaira Foundation for NMO (TSF) and Connor B. Judge Foundation (CBJF) are proud to present Demystifying NMO, a podcast series aimed at simplifying scientific jargon associated […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
This disease began with hiccups and vomiting 25+ times a day. I was certain that I had gotten food poisoning or had the flu. Later, I learned that things would […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On October 11, 2018, The Sumaira Foundation for NMO (TSF) announced its partnership with the Transverse Myelitis Association (TMA). Both organizations specialize in raising awareness for rare neuro-immune disorders while […]
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