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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
At age eight, when I first started chemotherapy for my autoimmune disease, the neurologist told my parents the maximum amount of time I could be on it was three years, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On Saturday, July 22, 2023, we hosted TSF’s Southern California Patient Day for NMOSD & MOGAD at UCLA Meyer and Renee Luskin Conference Center in Los Angeles where we were […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
Drogi Czytelniku – chciałabym podzielić się z Tobą naszą bardzo osobistą historią, która zmieniła życie moje i mojego męża. Bardzo bym chciała, żeby nasza historia była dla Ciebie przykładem nadziei […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Professional, Voices of NMO
I am a caregiver to my daughter, Nell, who was diagnosed with NMO at age 9. Prior to her diagnosis, she was an active, vibrant girl playing travel lacrosse, robustly […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
June 14, 2023 — The Sumaira Foundation (TSF), a global patient advocacy organization focused on rare neuroimmune conditions, is delighted to announce Tim Walbert, chairman, president and chief executive officer […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Sara Salama, MD, PhD, of Alexandra University (Egypt) to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes her the […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Salman Aljarallah, MBBS, of King Saud University in Riyadh, KSA, to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
On Monday, I woke up with a slight ache on the left side of my lower back which felt numb, like a bruise but without the pain. This numb spot […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
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