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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”，重新出发去寻找生命意义的故事。现在，他期待着NMO病友大会在中国举办，期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路，直到医学领域发现治愈的光芒，直到病友们能摆脱疾病带来的痛苦，直到NMO和MOG病友们都能重新拾起对世界的热爱…
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My NMO journey began in 2018. It was Martin Luther King Day. I was visiting my parents for the weekend. When I got up in the morning, I remember looking […]
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It all started with an itch at the back of my neck that continued for about three weeks without any sign of a rash or anything that could be causing […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
28 février 2023 – The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Double peine pour […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
January 3, 2023 — The Sumaira Foundation is pleased to welcome Dr. Sudarshini Ramanathan of the University of Sydney (Australia) to join TSF’s medical advisory board. Sudarshini Ramanathan, BSc (Med) […]
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January 3, 2023 — The Sumaira Foundation is pleased to welcome Patrick Waters, BSc PhD CSci FIBMS FRCPath, of the University of Oxford (United Kingdom) to join TSF’s medical advisory […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 21, 2022 — The Sumaira Foundation is pleased to announce the first round of awardees of TSF’s 2022 research grants. Congratulations to all the researchers who will each be awarded […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Mi nombre es Yaracelly Gaona, soy panameña, estoy casada, tengo 35 años y una hija de 7 años. A mis 28 años, días de dar a luz, presente dolor en la región dorsal […]
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