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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Mi nombre es Yaracelly Gaona, soy panameña, estoy casada, tengo 35 años y una hija de 7 años. A mis 28 años, días de dar a luz, presente dolor en la región dorsal […]
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The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Le 6 octobre 2014, le jour où ma vie a pris une nouvelle voie pour poursuivre son chemin. Le jour où j’ai commencé une cohabitation avec une maladie rare… À […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Bonjour à tous, je m’appelle Elodie. J’ai prochainement 37 ans. J’habite à Orp-Jauche, Brabant wallon, Belgique. En 2008, j’ai fait ma première poussée. Une nevrite optique. A l’époque, j’avais été […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
I was a young resident at the University of Verona’s, Neurology Unit when I met a woman with rapidly evolving extensive myelitis. I first thought about NMOSD and asked our […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient
On April 29, 1984, I landed at Boston’s Logan Airport with two suitcases and a seven-year-old girl holding my hand. This trip concluded a process that had begun three years […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professional, Voices of NMO
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD. Actually, there were two of them in the same neuroimmunology […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
August 22, 2022 – The Sumaira Foundation is pleased to welcome Pr. Friedemann Paul of Charité – Universitätsmedizin Berlin (Germany) to join TSF’s medical advisory board. Pr. Friedemann Paul Friedemann Paul […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
I was born and raised in Cuba where I played outside, ran, and enjoyed time with my friends. In my healthy teen years, I didn’t think I’d ever become chronically […]
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