Home » rare disease » Page 10
Tag: rare disease
Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
Nicole was a first-grade teacher and chorus director in a Title 1, low-income school district, where she was a beloved, appreciated, and award-winning professional… In May of 2017, Nicole thought […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything […]
Read
More
Posted by:
The Sumaira Foundation
in Caregiver, MOG, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
November 25, 2020 — The Sumaira Foundation for NMO is pleased to present “Understanding the Canadian NMOSD Journey”, a 6-part live webinar series featuring Canadian patients, caregivers, clinicians, researchers, and […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, TM, Voices of NMO
On the evening of Sunday, 17th January 2010, my mother was putting up a fight with my brothers and I to go to bed while we were chasing each other […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
My name is AnneMarie and my journey with NMO began in 2002 when I was just 16 years old… One April morning, I woke up with a stabbing pain in […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
November 9, 2020 – We are proud to announce the grant recipients of TSF’s 2020 research grants. Congratulations to our recipients who received $25,000 to initiate their projects! Diagnostics in […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
My name is Jaime. I live in the small town of Exeter, Pennsylvania. I am a wife and a mother to a beautiful and healthy 15 year-old daughter. And I […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, TM, Voices of NMO
My biggest fear in life was that I would have some incurable sickness or disease. Not heights, nor spiders, nor public speaking. It was getting sick. Both of my parents […]
Read
More