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Posted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO
It was March 2009. I was 39 years old. One morning, I woke up feeling significant pressure behind my left eye. I felt it mostly in the right corner of […]
Read MorePosted by: The Sumaira Foundation in Caregiver, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
February 18, 2020 — SRNA is proud to collaborate with The Sumaira Foundation for NMO, Connor B. Judge Foundation, and The Guthy-Jackson Charitable Foundation to launch ABCs of NMOSD, a 10-part […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, ON, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
On December 25, 2018, we finally received answers and a diagnosis after Dominic became ill on November 19th with what we thought was a bug that was going around his […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 16, 2019 — The Sumaira Foundation for NMO (TSF) and The Elliot Lewis Center are pleased to announce their partnership as of December 2019. The organizations have a shared […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
The theme for Gala 2020 is “old Hollywood” in celebration of the premiere of our 5-year impact video! We’ve set an ambitious goal to raise $100,000 to fund innovative, […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
December 5, 2019 – The Sumaira Foundation for NMO is pleased to welcome Joshua Katz, MD to its medical advisory board. Joshua Katz, MD Dr. Joshua Katz is the Co-Director […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
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