Home » rare disease » Page 19
Tag: rare disease
Posted by:
The Sumaira Foundation
in NMO, ON, Patient, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, […]
Read
More
Posted by:
The Sumaira Foundation
in Caregiver, NMO, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
We’re looking for 3-4 bright, passionate, and motivated individuals to join the team as part of our robust internship for a year! Ideal candidates should be Boston-based, multitaskers, have excellent […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
With respect to the patient’s desire to remain anonymous, we will refer to him as Matt. It started along with a very bad cold in late 2011. Eye pain and […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
We launched our quarterly newsletter on Earth Day 2017! Subscribe to our quarterly newsletter by clicking the subscribe button or CLICK HERE If you have comments, suggestions, or would like to […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
On March 25, 2017, The Sumaira Foundation for NMO hosted its 2nd Annual NMO Awareness Gala at the Mandarin Oriental, Boston. 3 REASONS YOU MADE IT A ROARING SUCCESS 2X Awareness: […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
Join us for an evening of fashion, champagne, music, and good company all in the name of charity. 20% of sales will be donated with hopes of finding a cure […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, Patient, Voices of NMO
On a warm February evening at the University of Miami, I sat in my Music Business lecture and wondered from where this strange soreness had come. There was a lingering […]
Read
More
Posted by:
The Sumaira Foundation
in MOG, NMO, Professional, Voices of NMO
I was an on-call intern late one night at the Johns Hopkins Hospital when I met a young woman who presented with weakness and pain in her legs. This was […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
Published on Socially Superlative‘s website. Written by Jenicka Hornung On Saturday, March 25th 2017, decked out in black tie roaring 20s attire, philanthropists gathered at the Mandarin Oriental Hotel in Boston […]
Read
More