Home » rare disease » Page 4
Tag: rare disease
Posted by:
The Sumaira Foundation
in News & Announcements
May 26, 2023 — The Sumaira Foundation is pleased to welcome Salman Aljarallah, MBBS, of King Saud University in Riyadh, KSA, to join TSF’s Medical Advisory Board. Dr. Salama’s involvement makes […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Nel mese di marzo 2012 avevo appena trovato lavoro a più di 60 chilometri da casa ma era il lavoro per il quale avevo appena terminato gli studi ed ero […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
In February 2020, I started having weakness, numbness, burning, and pain on both sides of my body, starting with my feet but rapidly progressing to the rest of my body. […]
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
“You have to grab life by the horns and enjoy every moment. Even if you’re not ill, you should do that!” April 7, 2023 — The Sumaira Foundation’s (TSF) first […]
Read
More
Posted by:
The Sumaira Foundation
in Caregiver, NMO, Voices of NMO
Modern medicine in the United States was a complete failure. For six weeks, the hospitals, doctors, and many lab tests couldn’t piece a single clue together… It was 2018, and […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
这是一个有关中国NMO之家联合创始人小高从病痛中“站起来”,重新出发去寻找生命意义的故事。现在,他期待着NMO病友大会在中国举办,期待着与TSF共同用我们的努力照亮NMO和MOG患者的世界。他说他还会继续在NMO病友会的建设上走很远很远的路,直到医学领域发现治愈的光芒,直到病友们能摆脱疾病带来的痛苦,直到NMO和MOG病友们都能重新拾起对世界的热爱…
Read
More
Posted by:
The Sumaira Foundation
in News & Announcements
28 février 2023 – The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]
Read
More
Posted by:
The Sumaira Foundation
in
You’re invited to join TSF’s next book club meeting on March 14th , during which we’ll discuss “Shifting Into High Gear” by Kyle Bryant. Shifting Into High Gear charts the course of […]
Read
More
Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Double peine pour […]
Read
More