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Posted by: The Sumaira Foundation in News & Announcements
August 16, 2021 – The Sumaira Foundation for NMO is pleased to welcome Elena Grebenciucova, MD to its medical advisory board. Elena Grebenciucova, MD Dr. Elena Grebenciucova is a neuro-immunologist […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
On July 21, 2021, we gathered in person to celebrate 7 years of illuminating the darkness of neuromyelitis optica in Boston. With your support, we were able to raise over […]
Read MorePosted by: The Sumaira Foundation in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January […]
Read MorePosted by: The Sumaira Foundation in Caregiver, NMO, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 23, 2021 — The Sumaira Foundation for NMO (TSF) and Portal Instruments are pleased to announce their partnership as of March 2021. Portal Instruments and TSF share a joint […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
The first time NMO hit me was on the evening before Thanksgiving in 2010… I clearly remember it because my wife and I were on holiday in the United States. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I […]
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