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Posted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Hi, my name is Noelani. I am 30 years old, was born and raised in Hawaii but currently reside in Nevada! Looking back, there were signs throughout my childhood of […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
WASHINGTON, May 26, 2022—The PAN Foundation and The Sumaira Foundation (TSF) today announced they are launching a new partnership to help people living with neuromyelitis optica spectrum disorder (NMOSD), providing […]
Read MorePosted by: The Sumaira Foundation in NMO, Voices of NMO
It started innocuously. In 2008 we moved to Ottawa with my employer for my career in pest control. On a gray, cloudy but humid day, I was out removing a […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
It all began with a tremor. It was September 2018, and I was off on maternity leave after having my second daughter earlier that year. As nice as that should […]
Read MorePosted by: The Sumaira Foundation in Caregiver, MOG, Voices of NMO
My beautiful 4-year-old (5 years old now) daughter Jaidyn woke up one morning in late April 2021 with a headache, fever, vomiting, and very lethargic. Her grandmother and I took […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient, Voices of NMO
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday in 2019, my vision deteriorated and by the end of […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
A native Portuguese speaker and resident of Denmark, Leda wrote her story in English, Portuguese, and Danish. Please scroll down to read Leda’s story in Portuguese and/or Danish. In 2018 […]
Read MorePosted by: The Sumaira Foundation in News & Announcements
March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient, Voices of NMO
Part I and II of this story were originally published in 2015 by NMO Stories, presented by The Guthy-Jackson Foundation and the Connor B. Judge Foundation. It was shared again […]
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