Tag: transverse myelitis

Ann’s NMO Story – Not Letting NMO Stop Her

Posted by: The Sumaira Foundation in NMO, ON, Patient, Voices of NMO

Ann and her husband were at the seaside, collecting seaweed to use in a kitchen garden they were digging.  Ann noticed a tightness in and around her chest, but assumed […]

Jeanette’s NMO Story – Surviving Since Birth

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

My name is Jeanette McCourt from Arizona and I was diagnosed with Neuromyelitis Optica on June 1, 2016. This diagnosis did not come easily or quickly. I had multiple diagnoses […]

ACTION REQUIRED | Time for Advocacy; Call Your Representatives & Senators

Posted by: The Sumaira Foundation in News & Announcements

Find your legislators here: https://whoismyrepresentative.com  If you have additional questions or need help, please contact Gabriela

EVENT | 2ND ANNUAL NEW ENGLAND NMO PATIENT DAY

Posted by: The Sumaira Foundation in News & Announcements

Register today! www.tinyurl.com/NMOdayNE

Arif’s Story – Becoming Stronger with TM

Posted by: The Sumaira Foundation in Patient, TM, Voices of NMO

My name is Arif and I am from Jhansi, a historic city located in the northern part of India. This is my TM story… I was in my final year […]

Daniele’s NMO Story – MENINA CORAGEM (Courageous Girl)

Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO

I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]

A Note from our Founder

Posted by: The Sumaira Foundation in Blog Posts

Dionne’s NMO Story – Journey to a Diagnosis

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her […]

Megan’s NMO Story – Coping via Cosmetics

Posted by: The Sumaira Foundation in NMO, ON, Patient, TM, Voices of NMO

Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, […]

Lillian’s NMO Story – Living For Her Family

Posted by: The Sumaira Foundation in NMO, Patient, TM, Voices of NMO

She thought she had a bad sunburn… Lillian had gone camping with her daughter and her Girl Scout troop in September of 2015.  When she returned home, her shoulders and […]