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Posted by:
The Sumaira Foundation
in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
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Posted by:
The Sumaira Foundation
in News & Announcements
The NMO Clinic and Research Laboratory at Massachusetts General Hospital November 7, 2019 – Three board members of The Sumaira Foundation for NMO, Dr. Michael Levy, Dr. Marcelo Matiello, and […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank […]
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Posted by:
The Sumaira Foundation
in News & Announcements
October 30, 2019 – The Sumaira Foundation for NMO is pleased to welcome Bart Chwalisz, MD to its medical advisory board. Bart Chwalisz, MD Dr. Chwalisz grew up in Poznan, […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]
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Posted by:
The Sumaira Foundation
in Caregiver, NMO, ON, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
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Posted by:
The Sumaira Foundation
in NMO, Patient, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. […]
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Posted by:
The Sumaira Foundation
in News & Announcements
On June 22, 2019, The Sumaira Foundation for NMO hosted its inaugural NMO Wellness Day, a day-long community event oriented to foster discussions around health and wellness as they relate to […]
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Posted by:
The Sumaira Foundation
in MOG, NMO, Professional, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me […]
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