TSF 5K For Rare Neuroimmune Disorders
Turning Miles into Medical Progress - Join us on September 13th for TSF's 2nd 5K to raise money for research! Last year's inaugural 5K helped fund a groundbreaking AI-powered diagnostic […]
Turning Miles into Medical Progress - Join us on September 13th for TSF's 2nd 5K to raise money for research! Last year's inaugural 5K helped fund a groundbreaking AI-powered diagnostic […]
The Caregivers Human Collective Project (HCP) is a groundbreaking support group hosted by The Sumaira Foundation, created specifically for caregivers of individuals living with rare neuroimmune diseases like NMOSD and […]
Meet the Author: Lisa Lauter, Author of *Songbirds Keep Singing* Join The Sumaira Foundation for a special edition of our Meet the Author series featuring Lisa Lauter, an author and patient living with autoimmune encephalitis (AE), and author of the memoir *Songbirds Keep Singing*. In this heartfelt conversation, Lisa will share the story behind her […]
Caregivers are an essential part of the rare neuroimmune community—but caring for someone you love can come with uncertainty, stress, and challenges that are not always easy to talk about. When you’re focused on supporting someone else, it can be easy to put your own needs on the back burner. Join Dr. Daniel Rohe from […]
We're coming to Michigan! Are you or your loved one impacted by: CIDP*, MG*, MOGAD*, or NMOSD*? You're invited to our event on Saturday, September 19th. Join us for a day of education, community and fun to: + Meet local patients, partners, care-partners and clinicians+ Ask experts questions in real time about symptom management, treatments […]
When your child is living with a neuroimmune disease, the questions can feel endless. What is happening in their body? What does a diagnosis mean for their future? And how can parents and caregivers feel more confident navigating care? Join Dr. Kristen Fisher of Texas Children’s for an approachable conversation about pediatric neuroimmune diseases. Together, […]
We're coming to Miami! Are you or your loved one impacted by: CIDP*, MG*, MOGAD*, or NMOSD*? You're invited to our event on Saturday, September 26th. Join us for a day of education, community and fun to: Meet local patients, partners, care-partners and clinicians Ask experts questions in real time about symptom management, treatments and therapies, […]
¡Nos vemos en Miami! ¿Usted o un ser querido vive con CIDP*, MG*, MOGAD* o NMOSD*? Lo invitamos a acompañarnos en nuestro evento el sábado 26 de septiembre. Acompáñenos a disfrutar de un día de educación, comunidad y convivencia para: • Conocer a pacientes, aliados, cuidadores y profesionales de la salud de su comunidad. • […]
Managing your finances can feel overwhelming, especially when living with the added costs and uncertainty that can come with a rare disease. In this first session of our three-part Financial Health series, Angelica Civilus, Vice President, Community Manager with Chase Bank, will share practical money skills to help you feel more confident about your financial […]
The Mental Health Monday meetings began as a way to address the various mental and emotional concerns that individuals experience when dealing with rare neuroimmune diseases. Patients, caregivers, and loved ones ride the rollercoaster of feelings throughout their daily lives, from the moment of symptom onset. Often, getting the proper diagnosis is a journey of […]
Juniors in Neuroimmunology: Meet the Expert – 2nd Edition Il corso, dedicato a giovani neurologi e assistenti in formazione, si propone di fornire una formazione aggiornata sulla diagnosi e sul trattamento delle principali patologie autoimmuni a carico del Sistema Nervoso Centrale e Periferico (incluse NMOSD/MOGAD, encefaliti autoimmuni, miastenia gravis, neuropatie autoimmuni, miositi, sindromi paraneoplastiche e […]
Credit and debt can sometimes feel complicated, confusing, or even stressful—but understanding your options can be an important step toward greater financial confidence. In the second session of our three-part Financial Health series, Angelica Civilus, Vice President, Community Manager with Chase Bank, will break down the basics of credit and share practical strategies for managing […]